Epidermolysis Bullosa News Columnist

Epidermolysis Bullosa News Columnist

Pensacola, Florida, United States | Columns | Contract | Fully remote

 

BioNews, Inc., a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the epidermolysis bullosa community to join our freelance staff of patient and caregiver columnists on Epidermolysis Bullosa News.

A BioNews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.

All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.

Please note you MUST be a member of the epidermolysis bullosa community — patient preferred, but caregivers may also apply for consideration — in order to apply for this position. 

Responsibilities and Duties

• Fulfill 1x monthly deadlines as agreed upon on hire.
• Communicate efficiently with your managers and editors.
• Submit 400-800-word drafts that adhere to BioNews policies and procedures.
• Aside from exceptions, drafts should not take more than 45 minutes to edit.
• Fulfill revisions as requested by editors in a timely manner.
• Complete training assigned by BioNews HR.

Experience Required

• Prior experience with writing for an audience.
• At least three months’ direct experience with having or caring for someone with epidermolysis bullosa.
• Caregivers must be direct relatives, guardians, or spouses.

Experience Preferred 

• Experience in being professionally edited for publication.
• Experienced in generating a blog or column.
• Participation in support groups, internet forums, or community groups relevant to epidermolysis bullosa.

Knowledge Required

• Fundamentals of how epidermolysis bullosa works.

Knowledge Preferred

• The content needs or wants of the epidermolysis bullosa community.

Skills Required

• A swift and independent learner of Internet technology.
• A creative mind capable of regularly generating unique content that appeals to target audiences.
• Time management.
• Advanced creative writing.

Skills Preferred

• Experience in using WordPress for content creation.
• Experience with the Slack communication app.

Abilities Required

• Internet access and use.
• Native or fluent English writing and reading abilities.